Five
central goals define the mission of the USRDS: to characterize
the ESRD population; to describe the prevalence and incidence
of ESRD along with trends in mortality and disease rates; to investigate
relationships among patient demographics, treatment modalities,
and morbidity; to identify new areas for special renal studies
and support investigator-initiated research; and to provide data
sets and samples of national data to support research by the Special
Studies Centers.
Administrative
oversight of the USRDS is as follows:
Lawrence Agodoa, MD and Paul Eggers, PhD provide direct oversight
of the Coordinating Center and Special Studies Centers, and members
of CMS, the ESRD networks, and the renal community provide crucial
input and feedback through their committee participation.
The
Steering Committee functions as the governing body of the USRDS,
and is responsible for the operations of the CC and SSCs. It works
under the direction of the Project Officers, and includes representatives
from CMS, the NIH, the CC, and each of the SSCs. Its responsibilities
include coordination among the centers, study design, project
tracking, data management and validation, assurance of data availability
for researchers and government officials, and oversight of Annual
Data Report production.
The
USRDS Advisory Committee plays a major role in advising the Project
Officers on appropriate and necessary special studies, data studies,
and analyses. This committee is also responsible for reviewing
manuscripts and Annual Data Reports.
The
Data Management Advisory Committee (DMAC) includes members from
CMS, Network Forum representatives, database technical staff,
and others appointed by the Project Officers. DMAC addresses the
accuracy and completeness of the data provided to the USRDS, and
works to ensure timely fulfillment of data requests.
The
Annual Data Report Committee (ADRC) reviews the data sections
of previous ADRs, proposals for future editions, and ideas for
expanded data availability on the USRDS website.
The
Information Systems Committee (ISC) reviews planned hardware requirements,
systems configuration, documentation, and performance, and evaluates
new technologies that may enhance the structure, function, and
management of the database.
The
Special Studies Review and Implementation Committee (SSRIC) serves
as the operations committee for SSC proposals and support of CC
projects. It is a collaboration of CMS, the ESRD networks, and
the providers.
The
Data Request Review Committee (DRRC) reviews data requests requiring
more than two hours of staff time to fulfill, and makes recommendations
to the Project Officers based on the types of data sets requested
and the ways in which the CC can improve the availability of data.
The
Renal Community Council (RCC), with 30 professional, scientific,
and advocacy groups interested in ESRD, serves as a significant
liaison between the USRDS and the ESRD community.
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