Along with producing the Annual Data Report on ESRD & Chronic Kidney Disease (CKD) in the United States, the USRDS also fulfills data requests, provides standard analysis files and specialized datasets to researchers, produces the Researcher’s Guide, and presents the results of its research at national conferences and in peer-reviewed journals. Six central goals define the mission of the USRDS: to characterize the ESRD population; to describe the prevalence and incidence of ESRD along with trends in mortality and disease rates; to investigate relationships among patient demographics, treatment modalities, and morbidity; to report the costs of ESRD treatments and total burden of ESRD program in the United States; to identify new areas for special renal studies and support investigator-initiated research; and to provide data sets and samples of national data to support research by the Special Studies Centers.
Administrative oversight of the USRDS is as follows:
Kevin Abbott, MD, MPH, and Lawrence Agodoa, MD provide direct oversight of the Coordinating Center and Special Studies Centers, and members of CMS, the ESRD networks, and the renal community provide crucial input and feedback through their committee participation.
The Steering Committee functions as the governing body of the USRDS, and is responsible for the operations of the CC and SSCs. It works under the direction of the Project Officers, and includes representatives from CMS, the NIH, the CC, and each of the SSCs. Its responsibilities include coordination among the centers, study design, project tracking, data management and validation, assurance of data availability for researchers and government officials, and oversight of Annual Data Report production.
The USRDS External Expert Panel plays a major role in advising the Project Officers on appropriate and necessary special studies, data studies, and analyses. This committee is also responsible for reviewing the Annual Data Reports.