Along with producing the Annual Data Report (ADR) on end-stage renal disease (ESRD) & chronic kidney disease (CKD) in the United States, the USRDS fulfills data requests, provides standard analysis files (SAFs) to researchers, produces the Researcher’s Guide to help researchers use USRDS data, and presents the results of its research at national conferences and in peer-reviewed journals.
Five central goals define the mission of the USRDS:
- Characterizing the ESRD population.
- Describing the incidence and prevalence of CKD and ESRD and trends in mortality and disease rates.
- Investigating relationships among patient demographics, treatment modalities, and morbidity.
- Reporting the costs of ESRD treatments and total burden of the ESRD program in the United States.
- Identifying new areas for special studies and supporting investigator-initiated research.
As the Contracting Officer Representatives (CORs), Kevin Abbott, MD, MPH, and Kevin Chan, MD provide direct oversight of the Coordinating Center (CC), and members of the Centers for Medicare & Medicaid Services (CMS), the ESRD networks, and the nephrology community provide crucial input and feedback through committee participation:
Kevin C. Abbott, MD, MPH
(Primary Point of Contact)
|Kevin Chan, MD|
|Program Director, Division of Kidney, Urologic, and Hematologic Diseases||Program Director, Division of Kidney, Urologic, and Hematologic Diseases|
6707 Democracy Blvd, Room 621
Bethesda, Maryland 20892
6707 Democracy Blvd.
Bethesda, Maryland 20892
Direct the following to the USRDS mailbox: For Data Use Agreement (DUA) Requests, please indicate “USRDS DUA Request” or “USRDS Manuscript Approval Request” in the subject line of the e-mail (email@example.com) for these requests.
Steering Committee & External Expert Panel
The Steering Committee functions as the governing body of the USRDS, and is responsible for the operations of the CC. It works under the direction of the CORs, and includes individuals from CMS, the National Institutes of Health (NIH), and the CC. Its responsibilities include data management and validation, assurance of data availability for researchers and government officials, oversight of Annual Data Report production, and study design and project tracking.
The USRDS External Expert Panel plays a major role in advising the CORs on appropriate and necessary special studies and analyses. This committee is also responsible for reviewing Annual Data Reports.
Coordinating Center Leadership
|Kirsten L. Johansen, MD||James B. Wetmore, MD, MS||David T. Gilbertson, PhD|
|Director||Deputy Director||Project Director|