Frequently Asked Questions
The United States Renal Data System (USRDS), funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health (NIH), is the national data registry that collects, analyzes, and distributes information on the end-stage renal disease (ESRD) population in the U.S., including treatments and outcomes. The USRDS Coordinating Center is operated by the Chronic Disease Research Group, a division of Hennepin Healthcare Research Institute located in Minneapolis, Minnesota.
No. Data presented in the USRDS Annual Data Reports are part of the public domain. However, please use the following citation and disclaimer as applicable:
United States Renal Data System. 2021 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2021.
Publications based on USRDS data supplied upon request must include the above citation and the following notice: The data reported here have been supplied by the United States Renal Data System (USRDS). The interpretation and reporting of these data are the responsibility of the author(s) and in no way should be seen as an official policy or interpretation of the U.S. government.
The Annual Data Report (ADR) is divided into three parts -- two volumes and Reference Tables. Specific chapters address trends in ESRD patient populations, quality of ESRD care, kidney transplantation outcomes, costs of ESRD care, Healthy People 2020 objectives, chronic kidney disease (CKD), pediatric ESRD, and cardiovascular disease. Visit the main ADR page or look at the Reference Tables. You may also review previous ADRs.
All ESRD patients, regardless of insurance coverage and age, are included in the USRDS database.
The Core, Transplant and Hospital SAFs contain information on all ESRD patients. Only patients with Medicare fee-for-service coverage are included in the claim files.
There is no cost for the standard analysis files.
The Data Extraction System for Kidney Related Information & Basic Epidemiology (DESKRIBE) system on the web site enables you to create your own tables using state or county-level data.
ESRD hospitalization, transplantation, Medicare costs, and mortality rates are typically represented as “per person-time” to provide more accurate comparisons among groups when follow-up time (i.e. patient exposure time) is not the same in all groups. This can be expressed as per 100, 1000, 100,000, 1 million person-years or patient-years at risk.
“Patient-year at risk” means that the denominator of the rate calculation is ascertained by adding exposure times of all patients, where each patient’s exposure time is defined as days spent in a pre-determined time period (i.e. a year), censored by events such as death, dis-enrollment, or the end of the time period, divided by 365.
“Patient-year” means that the denominator of the rate calculation is ascertained by counting all patients who are in the pre-determined time period for at least one day.
The expressions “per 100,000 patient-years at risk” and “per million patient-years” are different ways of normalizing the rates to better present them. Thus, a hospitalization rate of 0.0000015 per patient-year, can also be expressed as 1.5 per million patient-years.
The USRDS Coordinating Center does not provide medical assessments or diagnoses or discuss symptoms. We urge people with questions about their health to contact a health care professional for an individual assessment.
If you have any questions regarding the data presented in the USRDS Annual Data Reports or about using the website, please send an email to firstname.lastname@example.org or call 1-888-99USRDS.
Planned publications based on USRDS Standard Analysis Files (SAFs) must be submitted for privacy assurance review to the USRDS Coordinating Center prior to journal submission. Please use the USRDS Manuscript Approval Request Checklist (PDF) for reference and send your paper to email@example.com using the subject line: “USRDS manuscript.”