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Requesting Data

The USRDS has a primary objective of making data readily available to the renal community. In many cases, these requests can be answered by providing data currently published in the Annual Data Report (ADR) or elsewhere. Questions and data requests that are not answered directly by the ADR can be addressed to the Coordinating Center; all USRDS inquiries and requests are processed free of charge. Requests for data not available in the Annual Data Reports are evaluated on case-by-case basis.

We seek to provide a timely response to researchers, practitioners, and other members of the renal community. Due to the limited resources available for completing data requests that require advanced technical assistance, such requests must be made online or by e-mail. These will be reviewed and completed as promptly as staff resources allow.

The USRDS does not provide medical advice or comment on the current treatments prescribed by physicians. We urge those individuals that are seeking this type of information to consult with a qualified physician.

Simple Data Requests

Simple Data requests are those that can be fulfilled using already compiled ADR data, and are expected to require less than two hours to complete. Please submit Simple Data requests online through our data request form, or by email to USRDS@usrds.org. A more formal application is not required for Simple Data requests.

Research needs that cannot be fulfilled through ADR data can usually be met by requesting Standard Analysis Files or custom data files through a Merged Data request.

Standard Analysis Files (SAFs) and Merged Data Requests

These data files provide patient- and facility-specific data from the USRDS database to support CKD and ESRD research. The Coordinating Center maintains a set of SAFs to meet diverse research needs and provide easy access to data used in the ADR analyses and reference tables. Please allow 2-4 weeks for processing and completion of your SAF request.

Custom Merged Data request files can be created by the Coordinating Center for a limited number of approved research projects, and are generally limited to cases in which a researcher provides a patient finder file to be matched with the USRDS database. Please allow 4-6 weeks for processing and completion of your Merged Data request.

Such data requests require additional programmer/analyst time, and will be undertaken only upon written approval by the NIDDK Project Officer. Users must submit a project proposal, documentation of approval from an Institutional Review Board (IRB), and a signed Data Use Agreement with NIH. Please submit SAF or Merged Data requests by email to USRDS@usrds.org.

All necessary forms and a submission checklist can be found on this site. More information is provided in the Researcher's Guide to the USRDS Database.

To submit a question to the USRDS Coordinating Center please use the data request form.