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Requesting Data

The USRDS has a primary objective of making data available to the renal community. One of the important means of making data available is through timely response to data requests made by researchers, practitioners, and other members of the renal community. In many cases these requests can be answered by providing data published in the Annual Data Report (ADR) or elsewhere. Requests for data not available in the Annual Data Reports are evaluated on case by case basis. Due to the limited resources available for filling data requests that require a computer run, such requests must be made in writing (by e-mail, fax, or classic mail). These requests will be completed as resources allow. The USRDS does not provide medical advice or comment on the current treatments prescribed by physicians. We urge those individuals that are seeking this type of information to consult with a qualified physician.

Requests that require more than 2 hours of computer programmer/analyst time will be undertaken only upon written approval by the NIDDK Project Officer. Research needs that cannot be met by the ADR or by 2-hour data requests probably can be met by obtaining the Standard Analysis Files or custom data files.

Standard Analysis Files

These data files provide patient-specific data from the USRDS database to support ESRD research. User must sign a data release agreement with NIH and provide documentation of approval from an Institutional Review Board (IRB). More information is provided in the Researcher's Guide to the USRDS Database.

To submit a question to the USRDS Coordinating Center please use the data request form.